Sickle Gen Africa

We have screened about 500,000 babies in total which is actually a small number because we have about 900,000 babies being born every year.

- Prof. Kwaku Ohene-Frempong, Internal Advisory Board of SickleGenAfrica

Mentees of the Dean’s Biomedical Research Internship Programme at the Inaugural Sickle Cell Day Lecture organized by Sickle Cell Foundation of Ghana and

Director and PI of Professor Solomon Ofori-Acquah giving the keynote at the Inaugural World Sickle Cell Day Lecture.

We are here at the Inaugural World Sickle Cell Day Lecture organized by Sickle Cell Foundation of Ghana and .

Study Coordinator Dr David Nana Adjei gives a presentation on Sickle Cell and the Sickle Cell Disease Genomics Network of Africa. Rare Disease Ghana Initiative Impact Hub Accra

Interview with Cititvgh after giving the Keynote Speech. Rare Disease Ghana Initiative @ Korle-Bu Teaching Hospital

Professor Solomon Ofori-Acquah gives the Keynote at the Symposium on Genomics and Rare Disease in honour of Rare Disease Day 2019.

Rare Disease Ghana Initiative
Impact Hub Accra

Professor Solomon Ofori-Acquah will deliver the keynote address at the Symposium on Genomics and Rare Diseases organized by Rare Disease Ghana Rare Disease Ghana Initiative Supported by SickleGenAfrica.

Date: 28th February, 2019
Venue: O&G Auditorium
Time: 12 Noon

A Symposium on Genomics and Rare Diseases

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We have few days to Rare Disease Day 2019. In 2018, Rare Disease Ghana Initiative joined the infant school of Ghana International School to mark the Rare Disease Day. This year with the Theme : Bridging Gaps in health and social services the following activities have been lined up.

A. From Monday 18th February, 2019 we will commence the Rare Disease Day celebration with a social media campaign. Rare Disease Ghana Initiative will provide the content for the campaign. We encourage everyone to join in this campaign by sharing on your social media platforms. Follow the social media accounts of Rare Disease Ghana Initiative and share our posts. You can paint your face and share on any of the social media platform with
. Add your voice to create awareness on rare diseases.

B. On 21st February 2019, Rare Disease Ghana Initiative will join in virtually at the Rare Disease Day Policy event at United Nations Headquarters. This is an opportunity to discuss the next steps towards a UN Resolution on rare diseases. This is the 2nd High Level Event of the NGO Committee for .

C. On 27th February, 2019, Rare Disease Ghana Initiative will partner with to do a face and hand painting event with the students of the . We will spend the rest of the day with the students at the Accra Mall and A&C Mall to share information on Rare Diseases to the public.

D. On 28th February, Rare Disease Ghana Initiative in collaboration with the West African Genetic Medicine Center and with support from will host a symposium on Genomics and Rare Diseases. This is a platform to engage researchers, academics, clinicians, policy makers and civil society organizations to have a discourse on Rare Diseases while we collectively find a way to support those affected.

You are invited to join in any of these activities.

Contact Samuel Agyei Wiafe on +233500017050 or [email protected] if you would like to support our Rare Disease Day Event.