Scleroderma Australia

💛 What’s one thing you do on a tough symptom day that helps you feel a little better?

Supporting someone with scleroderma doesn’t mean having all the answers.

Sometimes, it’s simply listening, checking in, being patient when plans change, or asking, “What can I do to help?”

Scleroderma can affect people in many different ways, and not every symptom is visible. A little understanding can go a long way in helping someone feel supported and less alone.

Swipe through our guide for practical ways to support a friend, family member or loved one living with scleroderma.

Want to learn more?
Our "Supporting Someone with Scleroderma" brochure offers more helpful information and practical tips for friends and family.

Know someone who could benefit from this guide? Share this post with them or save it for later.

And if you support someone living with scleroderma, what’s one small thing that has helped make a difference?

⏰ The countdown is on! Grab your $10 ticket before sales close tomorrow.

Play For Purpose Raffle 33 has an incredible $350,000 First Prize Pack up for grabs, including a Lexus RX 450h+, $175,000 in gold bullion and more than $36,000 in shopping vouchers.

Best of all, 50% of every ticket purchased through Scleroderma Australia’s Play For Purpose page goes directly towards supporting our community, helping fund scleroderma nurses and specialist support across Australia.

Tickets close: Thursday 8 October 2026 at 8pm AEDT
Draw: Monday 12 October 2026 at 10am AEDT

Make sure you purchase your ticket through the Scleroderma Australia Play For Purpose page so your support goes directly to our community.

👉 Get your $10 ticket before sales close tomorrow!

Thank you for supporting our community.

What's it really like behind the scenes of a clinical trial?

Dr Stephanie Frade sat down with our Research Friends community to break down what most people never get to see, from study design to ethics amendments to the moments participants surprised her most.

Stephanie wears multiple hats, and one of those hats is being a person living with Systemic Lupus Erythematosus herself, amongst a family of systemic sclerosis, rheumatoid arthritis and coeliac disease. Because of this, Stephanie truly understands what it is like to live with a systemic autoimmune rheumatic condition, and she brings that understanding directly into how she designs her own research.

Curious about research that could be right for you? Search TrialFinder to see what's currently recruiting.

Read the full interview: https://bit.ly/4hbc27J

Search TrialFinder: https://bit.ly/4xZFkLz

🚨 Closing soon! Don’t miss your chance to support Scleroderma Australia and be in the running to win big!

Play For Purpose Raffle 33 tickets are just $10, with an incredible $350,000 First Prize Pack up for grabs - including a Lexus RX 450h+, $175,000 in gold bullion and more than $36,000 in shopping vouchers.

Best of all, 50% of every ticket purchased through Scleroderma Australia’s Play For Purpose page goes directly towards supporting our community, helping fund scleroderma nurses and specialist support across Australia.

⏰ Ticket sales close Thursday 8 October 2026 at 8 pm AEDT.

Please buy your tickets through the Scleroderma Australia page so your support goes directly to our community. Link in the comments section.

Don’t miss out - grab your $10 ticket today!

💬 Which scleroderma symptom has had the biggest impact on your daily routine?

Do you live in regional, rural or remote Australia?

Getting to a dermatologist can mean travelling long distances, waiting months for an appointment, and sometimes feeling it's nearly impossible to access specialist care!

The Australasian College of Dermatologists (ACD) wants to hear about your experience!

They’re inviting people with a skin condition who live in regional or rural areas to join an online group discussion about accessing dermatology services.

💻 Share your experience online
💳 A $100 gift card will be offered for your time
📅 Expressions of interest close 9 October 2026

Interested? Find out more about who can participate and how to get involved:
https://www.sclerodermaaustralia.org.au/acd-wants-to-hear-from-regional-and-rural-dermatology-patients/

📣 The survey closes today!

There’s still time to share your experience and help shape the future of scleroderma support, services and advocacy in Australia.

Your feedback matters, and every response can help us better understand what’s important to people living with scleroderma and their families.

📝 Complete the survey before it closes today, 30 September.
https://docs.google.com/forms/d/e/1FAIpQLSek5sS0wle98owaSaaG_5K9oaNPMfrpmEVLy10jALzYDkxk-Q/viewform

Thank you to everyone who has already taken the time to share their thoughts. 🌻

Workshop Outcomes Survey 2026 This survey is part of Scleroderma Australia’s national consultation following our 20th Anniversary Workshop. The workshop brought together people living with scleroderma, family members, clinicians, researchers and partners to identify the key challenges facing the community and potential ways fo...

This World Heart Day, don’t miss a beat!

For people living with scleroderma, looking after heart health is an important part of ongoing care.

Scleroderma can affect the heart and the blood vessels that connect the heart and lungs. Pulmonary hypertension, for example, can place extra strain on the right side of the heart. Heart involvement can also include changes to the heart muscle, inflammation around the heart and irregular heart rhythms.

Some heart and lung complications may not cause obvious symptoms early on, which is why regular monitoring and talking to your healthcare team about any new or changing symptoms is important.

This World Heart Day, take a moment to listen to your body, know your heart and don’t miss a beat. ❤️